I listen to you guys daily and I have enjoyed every moment. I have a
big favor to ask of you and your listeners. Let me explain and I feel
sure that you can help me out. I am an adult that has
neurofirbromatosis (NERVE FIBER TUMOR). Big word, so people with this
disorder call it NF. I have had many surgeries over the years and felt
totally different from everyone else. I have a facial difference, as
do many of the children with NF. It does cause varied problems. Then
18 years ago, I found out they were having a camp for people with NF
and their families. I can not begin to tell you how much it meant to
me to finally meet others with this disorder. Now it is held at Camp
for All in Burton, Tx. in Sept. and we have a huge attendance every
year. They come from all over Texas to attend. Most in attendance are
kids, just wanting to be kids. Now, I am getting older, but the
friendships the kids make here are huge and long lasting. You see,
sometimes it's hard to make friends, when you may look different and
have a learning disability.
My problem? Every year we have always had lots of door and bingo
prizes, that the kids look forward to winning. This year, I have
pounded the pavement and hardly any store is giving away anything!
With the economy and the heat, I am not having much luck ;o( I have
not even got 1 single toy! Even Walmart is pretty much tapped out. So,
I understand, times are tough, but what's bingo without prizes??
Can the bunch of you or your listeners help us out any? Attached is
our 501c papers and the letter I am presenting companies. You can also
visit the Texas NF Foundation website at www.texasnf.org
Thank you for all the morning laughs!
Yes, we share email, old fashion, I know. I really just wanted to
thank you for all that you had done, not only for the kids at camp,
but Gary also. He has had it pretty tough the last couple of years and
he deserved something wonderful to happen to him. He feels so strongly
about NF camp, the kids, and families that it serves.
Last Dec. at MD Anderson Hospital, he had a tumor removed that went
all the way from his rear to his knee. They thought it was cancerous
for 2 months there and who was the first people he called? Not his
family, but 2 friends he had met at NF Camp. It's just that important.
Gary is the best of the best. Besides being my husband, he is also my
care partner, for I am living with multiple sclerosis. It's been
really rough on Gary the last few years and this has been the biggest
kick of his life and I just wanted to say THANKS! I am attaching our
story card, that we used this year to advocate at the capital. Just so
you will really know Gary and what a wonderful man he is.
When my husband and I said the vows “in sickness and health” 30 years ago, we had no idea that MS would be our silent partner. It affects every decision we make where we live, what cars we get, what job my husband Gary takes, and every financial decision.
In 2006 an MS treatment did damage to my heart and I had to have a quadruple bypass. I also got aseptic meningitis. I was very sick for 4 months and Gary became my caregiver. I couldn’t be left alone and we couldn‘t afford to hire someone. Gary ran out of FMLA and lost a job that he loved and had been at for 14 years.
We lost everything: our house, 2 cars. Most importantly we had to say goodbye to the 3 foster care developmentally delayed men that had lived in our house for almost 10 years.
We are still trying to recover. Gary had to put me in a rehab, pack up our house and move to a new city to find a job. He works nights now so he can be here when I am awake. The emotional and physical toll on him has been significant.
On behalf of Texans with MS, their caregivers and families, please support Respite Services!
>>> O.k. at this point I was laying on the table, as I'm sure you are. What an amazing couple. I love these people and I love the listeners of Mix 94.7 for coming through for us again. Gary is coming to pick everything up at the end of the day tomorrow (fri Aug 7th), but if you would like to help with money or prizes for these kids, please feel free to contact us. email@example.com
I hope reading this has changed your life, your perspective and your appreciation for what you have. It did for me.
This is truly why Sandy and I love what we do on the radio in Austin. We appreciate our listeners and to those consultants, researchers and newbies who don't understand why we do what we do, F.U.!!!!!!!
Have a wonderful day. God bless, JB